Tomorrow morning my sister Nancy will be coming to Sloan Kettering for the procedure to harvest her bone marrow, for my transplant.  The procedure will take 1-2 hours under general anesthesia.  She will be tired and sore for a few days, and I pray that it won’t be too bad.  There will be 2 doctors, one on each side of the back of her hip bones.  They will go in with a hollow needle and pull out blood and bone marrow (50 small holes on each side).  Nan donated a pint of her own blood 2 weeks ago, so that she can receive it back during her procedure. 

Let me tell you a little about my little big sister (I call her that because I am taller than she is).

Nancy is a nurse.  When you meet her you will understand why.  She is one of the most giving, selfless people on this Earth.  She will move Heaven and Hell to help you the best that she can.  She will stay late at night after her shift is over to make sure her patients are taken care of and her work has been properly documented.  She will comfort you with her soothing voice and disarming laugh.  She will hold your hand until you feel better, and you will feel better just by her being there.

Although I have never been one of her patients, I know all of this to be true.  Last year was a trying year for the Walsh family (2 trying years in a row, can we catch a break here!?).  My dad had multiple surgeries on his spine which kept him at the hospital for 6 weeks.  Not only was Nancy the family spokesperson and liaison with the medical staff, she actually saved my dad’s life by demanding he be scanned for blood clots. The doctors said the test was not warranted but she would not back down.  Low and behold, he had several large blood clots in his legs.  He was immediately scheduled for an emergency procedure the next morning to have filters put in his Vena Cava to prevent the clots from going to his heart, lungs, or brain.  We don’t want to ever think about what could have happened if Nancy didn’t insist on that procedure.

In addition to that, 2 of my other sisters had knee surgeries, and a hernia surgery last year (which Nancy insisted she go to the ER for which resulted in emergency surgery).  Nancy again was head nurse of the Walsh medical team, as she always is, advising on medication, the best protocols, best ways to communicate with the medical staff, and just general comfort.

Not only did she take care of her entire family, she had to take care of herself after an extensive and highly complicated surgery to treat her longtime battle with endometriosis.  Nancy suffered through the pain of endometriosis her entire life.  But it finally came to a head last July when she had trouble just doing day to day activities.  It was discovered that the endometriosis had taken over and was strangling some of her vital organs, namely her bladder and a vital artery.  She endured a 9 hour surgery with multiple specialists including the top endometriosis doctor in the world; he said it was the worst case he had ever seen.  When Kath and I went to see her in the recovery room after the surgery, the first thing out of her mouth was “How are you guys?  Are you ok?”  Seriously?  You were just in surgery for 9 hours, WE’RE FINE!  But that’s Nancy, always thinking about others before herself.  Thankfully she was recently given a clean bill of health and is free of endometriosis for the first time in her life.

When we found out she was my 100% perfect match (I called her and told she had won the Golden Ticket!), Nancy promised she would do anything for me.  I was scared because she was still recovering from her own surgery, I was afraid it she might be too fragile to go through another procedure less than a year after hers.  But she assured me she would do whatever it takes to save my life.  And that is exactly what she is doing; literally saving me so that I can go on to lead a happy healthy life with Sully and the rest of our friends and family, and God willing, our children.  The risks of complications from the procedure are small, and she should heal quickly, but the risks are still there, and she will be literally laying down and telling the doctors to take whatever they need from her and give it to me so that I can live.  She is a special, special person; a real life angel walking amongst us, I kid you not.  This is my sister Nancy, chosen to save me and doing so without hesitation.  I love you Nan.

Side note: when Sully first met Nancy he thought she was the sweetest, nicest person he’d ever met. (Two adjectives that neither he nor I would ever use to describe myself, by the way).  The words he said after meeting Nancy went something like this: “I wish we could take a little of her niceness and inject it into you”.  Well babe, you are getting your wish!  Let’s hope you like the new and improved Nice MaryKate!

Hi guys.  So the last time we spoke was July 9^th when I was introducing you to Poley McPoleface.  If you want more info on why we named him that, please go back to that post.  I included a link.

My hope was to blog yesterday but the truth is, I got really sick.  Saturday night I had my first round of chemo which was Cyclophosphamide (aka Cytoxan).  Truth be told, other than a couple tears on my part, and a little nausea, it was really uneventful.  And I’ll take uneventful any day.  With the chemo they stream in lots of fluids into my port in order to protect my bladder and kidneys and keep everything moving along.  Since I have so many fluids coming in, they carefully measure my fluid output.  I have seriously never discussed urine so much in my life as I have in the past couple of days.  Who knew it could be so important and interesting?  Well my urine output wasn’t keeping up with my fluid intake so they had to give me somethings call Lasix, which basically triggers your bladder to go any time something is in there.  So needless to say, I was up all night going to see Potty McPotface.

On Sunday, I woke up feeling pretty ok, albeit tired.  At 10am they started my first round of horse ATG (Antithymocyte Globulin).  Horse?  What the heck does a horse have to do with anything?  Well, my friends, I’ll tell you.  ATG is an antibody against lymphocytes and will effectively suppress my immune system so as not to be active when I receive my sister’s immune system.  The way this medication is produced is that certain cells are injected into a horse (yes an actual horse, and sometimes rabbits!) and the horse produces large number of these antibodies that can then be removed and injected into humans.  WHO EVER THOUGHT OF THIS????????  

The ATG went through ok, I had some chills, but they went away pretty quickly.  Denise and Harry Zapata came for a visit (my first visitors!  Other than Sully who has been with me all day everyday), and we had some laughs and really nice time chatting.  After they left, my sister Kath came.  We chatted and walked the halls a bit.  After we came back from our walk, I started feeling pretty bad.  I started getting chills again, BAD.  Then a 102 fever.  It’s such a horrible feeling, being freezing cold yet burning up at the same time and shaking uncontrollably.  I was so uncomfortable.  I tried to power though it, breathing in through the nose, out through the mouth.  Yeah, that doesn’t always work.  By the time the nurse came in I was making the sounds of a sobbing, choking animal.  I actually told the nurse “I’ve never made sounds like this ever in my life!”  Not my finest moment.  A few hours and lots of drugs later, I finally felt a little better.  Though I kind of felt drunk and my skin was still hot to the touch.

I didn’t sleep too much that night, and I had to go on the Lasix again, so I was up and down every hour or so.  I was beyond thirsty and when I tried some water, it all came up again.  Blah!  This blows!!

Ok so now it’s Monday, I’m feeling ok even without much sleep.  Sully and my sister Maureen are here with me.  Moe decorated the room with twinkle lights and pictures of my nieces and nephews.  It really spruced the place up!

Though I can’t help but remember that this time last week I was on the beach in Montauk with my love, reading a book, listening to the waves crashing and sipping cold sparkling rose.  Today I have 12 lines of stuff flowing into my port, and I’m counting my urine.  At least I have my new shark friend to keep me warm and comfy.