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I’m a Bad Blogger
I’m a bad blogger. A bad, bad blogger. If blogging was my job, I would have been fired weeks ago. My advertisers would have left me, my followers would have written me hate mail, I would seriously be questioning my place in the blogosphere, and I’d be broke. But thankfully, blogging is not my job,…
Do You See What I See?
Guys. Do you see it? Look closely at the picture… My white counts are up! And I have Neutrophils! After 12 days of none. This means the transplant is working!!! And working very quickly. Today is day 11; they say that for many people, counts don’t start coming up until day 14-21. This is awesome!…
Hair Today, Gone Tomorrow
I’m not sure how many men out there are manly enough to shave off their wife’s hair when they request it, but I’ve got one of them. He is my champion. The Red Viper to my Tyrion Lannister in a trial by combat, except successful (spoiler alert for Game of Thrones fans! Sorry!). He handled the...
Spreadsheet!
Hi guys! Sorry I haven’t written in a few days. But it’s really because there isn’t much to report. I’m doing really well. If I was at home and not hooked up to Poley McPoleface, I would mostly feel like myself. Maybe just a sleepier version of myself. I am having a little back pain…
Transplant & Day +1
Yesterday I received my bone marrow transplant. I don’t want to say it was uneventful, because, well that’s the reason we’re all here. But it was pretty uneventful, which is good. I got a big bag of Nancy’s blood and marrow transfused into me over a 3 hour period along with lots of fluid. I…
There are Good Days and There are Bad Days
“There are good days and there are bad days and this was one of them.” Hi everyone, After 2 great days I had a rough one again today. 103 fever, chills, hives, headache;you name it (except nausea thankfully). Feeling a bit better now though. Nancy’s procedure went beautifully and she and Dave were just visiting…
Nancy
Tomorrow morning my sister Nancy will be coming to Sloan Kettering for the procedure to harvest her bone marrow, for my transplant. The procedure will take 1-2 hours under general anesthesia. She will be tired and sore for a few days, and I pray that it won’t be too bad. There will be 2 doctors,…
ATG-Chemo Cocktail – Shaken not Stirred
Hi guys. So the last time we spoke was July 9th when I was introducing you to Poley McPoleface. If you want more info on why we named him that, please go back to that post. I included a link. My hope was to blog yesterday but the truth is, I got really sick. Saturday…
Poley McPoleface
So I was finally admitted to my room around 12:15 this morning. It’s a cute room. My nurse took me on a tour of the floor then ran through questions, vital signs, hospital protocol and the like. After that I was able to unpack my thing and get settled in. I was feeling totally fine…
Platelets, Ports & Hives, Oh My!
So today is my admission date and also the day I received my port. This official name for this port is a Triple Hickman Line or Central Venus Catheter. My doctor actually knows Dr. Hickman who created this port for children. The line was so incredibly effective, that it is now the standard of care…